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| -A- |
| Albinism |
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National Organization for Albinism and Hypopigmentation
1530 Locust Street Box 29
Philadelphia, PA 19102
Phone: (215) 545-2322 or (800) 473-2310
E-mail: noah@albinism.org
Web page: www.albinism.org
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| AlopeciaAreata |
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National Alopecia Areata
Foundation
710 "C" Street, Suite 11
San Rafael, CA 94901
Contact: Vicki Kalabokes, Chief Executive Officer
Phone: (415) 456-4644 Fax: (415) 456-4274
E-mail: NAAF@compuserve.com
Web page: weber.u.washington.edu/~dvictor/natl.html
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Top Of page |
| -B- |
| Basal Cell
Carcinoma See Skin Cancer |
| Behcet's
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American Behcet's
Foundation, Inc.
P.O. Box 54063 Minneapolis, MN 55454-0063
Phone: (800) 723-4238
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Birthmarks |
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The Hemangioma and
Vascular Birthmark Foundation
P.O. Box 106
Latham, N.Y. 12110
Contact: Linda Shannon, Executive Director
E-mail: hvbf@aol.com or info@birthmark.org
Web page: www.birthmark.org
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Top Of page |
| -D- |
| Darier-White
Syndrome See Ichthyosis |
| Dermatitis
Herptiformis |
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American Celiac Society
58 Musano Court West
Orange, NJ 07052
Phone: (973) 325-8837 Fax: (973) 669-8808 |
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Celiac Disease Foundation
3251 Ventura Boulevard, Number 3
Studio City, CA 91604-1838
Phone: (818) 990-2354 Fax: (818) 990-2379
Web page: www.celiac.org
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Celiac Sprue
Association/USA
P.O. Box 31700
Omaha, NE 68131
Phone: (402) 558-0600 |
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Gluten Intolerance Group
of North America
15110 10th Avenue, SW, Suite A
Seattle, WA 98166
Contact: Cynthia Kupper, RD, CDE, CEO
Phone: (206) 246-6652 Fax: (206) 246-6531
Web page: www.gluten.net |
| Dermatomyositis |
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Muscular Dystrophy
Association (MDA)
3300 East Sunrise Drive
Tucson, AZ 85718
Phone: (800) 572-1717 Fax: (601) 529-5300
E-mail: mda@mdausa.org
Web page: www.mdausa.org
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Top Of page |
| -E- |
| Eczema
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The National Eczema
Society
163 Eversholt Street
London NW1 1BU UNITED KINGDOM
Phone: (44) 71-388-4097 Fax: (44) 71-388-5882
Web page: www.eczema.org
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The National Eczema
Association for Science & Education (N.E.A.S.E.)
1221 S.W. Yamhill, Suite 303
Portland, OR 97205
Contact: Robert O. McAlister, Ph.D., Executive Director
Phone: (503) 228-4430 Fax: (503) 273-8778 |
| Erythema
Multiforme - Stevens Johnson's Syndrome |
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Stevens Johnson's Syndrome
Foundation
9285 N. Utica Street
Westminster, CO 80030
Phone: (303) 430-9559 Fax: (303) 487-9359
E-mail: sjsupport@aol.com
Web page: members.aol.com/_ht_a/sjsupport/sjsmain.html |
Top Of page |
| -G- |
| Gluten
Intolerance See Dermatitis Herpetiformis
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Top Of page |
| -H- |
| Hansen's
Disease See Leprosy
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| Hemangiomas
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The Hemangioma and
Vascular Birthmark Foundation
P.O. Box 106
Latham, N.Y. 12110
Contact: Linda Shannon, Executive Director
E-mail: hvbf@aol.com or info@birthmark.org
Web page: www.birthmark.org |
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See Klippel-Trenaunay Syndrome
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| Hemochromatosis
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Hemochromatosis Research
Foundation
P.O. Box 8569
Albany, NY 12208
Phone: (518) 489-0972 Fax: (518) 489-0227 |
| Herpes |
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Herpes Resource Center
American Social Health Association
P.O. Box 13827
Research Triangle Park, NC 27709
Contact: Leigh Jolley, Program Coordinator
Phone: (919) 361-8488 (National Herpes Hotline)
Purchase Herpes Info: (800) 230-6039
Web page: www.ashastd.org |
| Histiocytosis
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Histiocytosis Association
of America, Inc.
302 N. Broadway
Pitman, NJ 08071
Phone: (800) 548-2758 Fax: (609) 589-6614 |
Top Of page |
| -I- |
| Ichthyosis |
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Foundation for Ichthyosis
& Related Skin Types, Inc. (F.I.R.S.T.)
P.O. Box 669
Ardmore, PA 19003-0669
Phone:(610) 789-3995 or (800) 545-3286 Fax: (610) 789-4366
E-mail: ichthyosis@aol.com
Web page: www.scalyskin.org |
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National Registry for
Ichthyosis & Related Skin Disorders
University of Washington
Box 356524
Seattle, WA 98195
Phone:(800) 595-1265 or (206) 616-3179 Fax: (206) 616-4302
E-mail: ichreg@u.washington.edu
Web page: depts.washington.edu/ichreg/ichthyosis.registry/ |
Top Of page |
| -K- |
| Klippel-Trenaunay
Syndrome |
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K-T Syndrome Support Group
4610 Wooddale Avenue
Edina, MN 55424
Contact: Judy Vessey, President
Phone: (612) 925-2596 |
Top Of page |
| -L- |
| Leprosy |
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Damien Dutton Society for
Leprosy Aid, Inc.
616 Bedford Avenue
Bellmore, NY 11710
Phone: (516) 221-5829 |
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Gillis W. Long Hansen's
Disease Center
5445 Point Clair Road
Carville, LA 70721
Phone: (504) 642-4700 Fax: (504) 642-4729 |
| Lupus |
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American Lupus Society
3914 Del Amo Boulevard Suite 922
Torrance, CA 90503
Phone:(213) 542-8891 or (800) 331-9802 |
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Bay Area Lupus Foundation
2635 North First Street Suite 206
San Jose, CA 95134
Phone: (408) 954-8600 or (800) 523-3363 Fax: (408) 954-8129 |
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Lupus Foundation of
America, Inc.
1300 Piccard Drive Suite 200
Rockville, MD 20850
Contact: Deb Blom, Field Service Manager
Phone: (301) 670-9292 or (800) 558-0121 Fax: (301) 670-9486
Web page: www.lupus.org
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Massachusetts Chapter
425 Watertown Street
Newton, MA 02158
Contact: Mimi LaCamera, Executive Director
Phone: (617) 332-9014 |
| Lymphomatoid
Papulosis (& other Ki-1 positive cutaneous lymphomas) |
|
Lymphomatoid Papulosis
Central Registry
Department of Pathology
Beth Israel Hospital
330 Brookline Avenue
Boston, MA 02215
Contact: Marshall E. Kadin, M.D.
Phone: (617) 667-5886 Fax: (617) 667-4533
E-mail: mkadin@bidmc.harvard.edu
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| -M- |
| Melanoma See Skin Cancer |
Top Of page |
| -N- |
| Neurofibromatosis |
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National Neurofibromatosis
Foundation
95 Pine Street 16th Floor
New York, NY 10005
Phone: (212) 344-6633 or (800) 323-7938 Fax: (212) 747-0004
E-mail: NNFF@aol.com Web page: nf.org |
| Nevi |
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Nevus Network - Congenital
Nevus Support Group
PO Box 1981
Woodbridge, VA 22193
Phone: (703) 492-0253 Fax: (405) 377-3403
E-mail: nevusnet@bigfoot.com
Web page: www.nevusnetwork.org
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| -O- |
| Ostomy |
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United Ostomy Association
19772 MacArthur Boulevard Suite 200
Irvine, CA 92612-2405
Phone: (714) 660-8624 or (800) 826-0826 Fax: (714) 660-9262
E-mail: uoa@deltanet.com
Web page: www.uoa.org |
Top Of page |
| -P- |
| Port Wine
Stain |
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National Congenital Port
Wine Stain Foundation
125 East 63rd Street
New York, NY 10021
Contact: Janet O'Kane
hone:(516) 867-5137 Fax: (516) 869-1278 |
| Porphyria |
|
American Porphyria
Foundation
P.O. Box 22712
Houston, TX 77227
Contact: Desiree Lyon, Executive Director
Phone: (713) 266-9617
E-mail: porphyrus@juno.com
Web page: www.enterprise.net/apf/ |
| Post Herpetic
Neuralgia |
|
VZV Research Foundation
36 East 72nd Street (PHN)
New York, NY 10021
Phone: (212) 472-3181 |
| Pseudoxanthoma
Elasticum |
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National Association for
Pseudoxanthoma Elasticum
3500 East 12th Avenue
Denver, CO 80206
Contact: Al Ferrari
Phone: (303) 355-3866 Fax: (303) 355-3859
E-Mail: pxenape@estreet.com
Website: www.napxe.org |
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PXE International, Inc.
23 Mountain Street
Sharon, MA 02067-2234
Ms. Sharon Terry, President
Phone: 781-784-3817 Fax#: 781-784-3817
Email: pxe@tiac.net
Website: www.pxe.org |
| Pseudofolliculitis
Barbae |
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Pseudofolliculitis Barbae
Sufferers of America, Inc.
P.O. Box 3761
Port Arthur, TX 77643
Phone: (409) 982-2206 Fax: (409) 983-2103
Web page: www.pernet.net/~pfb |
| Psoriasis |
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Canadian Psoriasis
Foundation
1306 Wellington Street, Suite 500-A
Ottawa, ON K1Y 3B2 CANADA
Phone: (613) 728-4000 or (800) 265-0926 Fax: (613) 728-8913 |
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International Federation
of Psoriasis Associations
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223-7195
Phone: (503) 244-7404 Fax: (503) 245-0626
E-mail: marcy@npfusa.org |
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National Psoriasis
Foundation
6600 S.W. 92nd Avenue, Suite 300
Portland, OR 97223-7195
Contact: Gail M. Zimmerman, Executive Director
Phone: (503) 244-7404 Fax: (503) 245-0626
E-mail: getinfo@npfusa.org
Web page: www.psoriasis.org |
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Problem Psoriasis Clinic
909 Ridgeway Loop Road
Memphis, TN 38103
Phone: (901) 767-3612 Fax: (901) 761-5468
{A Special clinic where patients with difficult-to-manage psoriasis
are invited to seek help based on microbiologic investigation
and antimicrobial therapy.} |
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Psoriasis Research
Institute
600 Town & Country Village
Palo Alto, CA 94301
Phone: (415) 326-1848 Fax: (415) 326-1262 |
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Psoriasis Society of
Canada National
Office P.O. Box 25015
HaliFax, NS B3M 4H4 CANADA
Contact: Judy Misner, Founder
Phone: (902) 443-8680 Fax: (902) 457-1664 |
Top Of page |
| -R- |
| Rosacea |
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National Rosacea Society
800 South Northwest Highway, Suite 200
Barrington, IL 60010
Contact: Suzanne Corr
Phone: (847) 382-8971 or (888) NO BLUSH Fax: (847) 382-5567
E-mail: rosaceas@aol.com |
Top Of page |
| -S- |
| Sarcoidosis |
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National Sarcoidosis
Resource Center
PO BOX 1593
Piscataway, NJ 08855-1593
Phone: (732) 699-0733 Fax: (732) 699-0882
E-mail: sandra@nsrc-global.net
Web page: www.nsrc-global.net |
| Scleroderma |
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Scleroderma Federation,
Inc. See United Scleroderma Foundation, Inc. |
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Scleroderma Info Exchange,
Inc.
150 Hines Farm Road
Cranston, RI 02921
Contact: Harlan Hersey, Executive Director
Phone: (401) 943-3909 |
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Scleroderma Research
Foundation
Pueblo Medical Commons
2320 Bath Street Suite 307
Santa Barbara, CA 93105
Phone: (800) 441-CURE
Web page: www.srfcure.org
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United Scleroderma
Foundation, Inc.
(now merged with Sclerodema Federation)
89 Newbury St, Suite 201
Danvers, MA 01923
Phone:(408) 728-2202 or (800) 722-HOPE Fax: (408) 728-3328
Web page: swcybermall.com/scleroderma/
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| Shingles |
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VZV Research Foundation
40 East 72nd Street
New York, NY 10021
Phone: (212) 472-3181 |
| Sjogren's
Syndrome |
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National Sjogren's
Syndrome Association
5815 North Black Canyon Highway, Suite 103
Phoenix, AZ 85015-2200
Phone: (602) 433-9844 Fax: (602) 433-9838
E-mail: nssa@aol.com
Web page: www.sjogrens.org
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Sjogren's Syndrome
Foundation, Inc.
333 N. Broadway, Suite 2000
Jericho, NY 11753
Phone: (516) 933-6365 Fax: (516) 933-6368
or
(800) 4-SJOGRENS, (800) 475-6473
Web page: www.sjogrens.com
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