Skin-Related Support Groups, Foundations, & Organizations

Select a letter

-A- -B- -C- -D- -E- -F- -G- -H- -I- -J- -K- -L- -M- -N- -O- -P- -Q- -R- -S- -T- -U- -V- -W- -X- -Y- -Z-

-A-
Albinism
	National Organization for Albinism and Hypopigmentation 1530 Locust Street Box 29 Philadelphia, PA 19102 Phone: (215) 545-2322 or (800) 473-2310 E-mail: noah@albinism.org Web page: www.albinism.org
AlopeciaAreata
	National Alopecia Areata Foundation 710 "C" Street, Suite 11 San Rafael, CA 94901 Contact: Vicki Kalabokes, Chief Executive Officer Phone: (415) 456-4644 Fax: (415) 456-4274 E-mail: NAAF@compuserve.com Web page: weber.u.washington.edu/~dvictor/natl.html
Top Of page
-B-
Basal Cell Carcinoma See Skin Cancer
Behcet's
	American Behcet's Foundation, Inc. P.O. Box 54063 Minneapolis, MN 55454-0063 Phone: (800) 723-4238
Birthmarks
	The Hemangioma and Vascular Birthmark Foundation P.O. Box 106 Latham, N.Y. 12110 Contact: Linda Shannon, Executive Director E-mail: hvbf@aol.com or info@birthmark.org Web page: www.birthmark.org
Top Of page
-D-
Darier-White Syndrome See Ichthyosis
Dermatitis Herptiformis
	American Celiac Society 58 Musano Court West Orange, NJ 07052 Phone: (973) 325-8837 Fax: (973) 669-8808
	Celiac Disease Foundation 3251 Ventura Boulevard, Number 3 Studio City, CA 91604-1838 Phone: (818) 990-2354 Fax: (818) 990-2379 Web page: www.celiac.org
	Celiac Sprue Association/USA P.O. Box 31700 Omaha, NE 68131 Phone: (402) 558-0600
	Gluten Intolerance Group of North America 15110 10th Avenue, SW, Suite A Seattle, WA 98166 Contact: Cynthia Kupper, RD, CDE, CEO Phone: (206) 246-6652 Fax: (206) 246-6531 Web page: www.gluten.net
Dermatomyositis
	Muscular Dystrophy Association (MDA) 3300 East Sunrise Drive Tucson, AZ 85718 Phone: (800) 572-1717 Fax: (601) 529-5300 E-mail: mda@mdausa.org Web page: www.mdausa.org
Top Of page
-E-
Eczema
	The National Eczema Society 163 Eversholt Street London NW1 1BU UNITED KINGDOM Phone: (44) 71-388-4097 Fax: (44) 71-388-5882 Web page: www.eczema.org
	The National Eczema Association for Science & Education (N.E.A.S.E.) 1221 S.W. Yamhill, Suite 303 Portland, OR 97205 Contact: Robert O. McAlister, Ph.D., Executive Director Phone: (503) 228-4430 Fax: (503) 273-8778
Erythema Multiforme - Stevens Johnson's Syndrome
	Stevens Johnson's Syndrome Foundation 9285 N. Utica Street Westminster, CO 80030 Phone: (303) 430-9559 Fax: (303) 487-9359 E-mail: sjsupport@aol.com Web page: members.aol.com/_ht_a/sjsupport/sjsmain.html
Top Of page
-G-
Gluten Intolerance See Dermatitis Herpetiformis
Top Of page
-H-
Hansen's Disease See Leprosy
Hemangiomas
	The Hemangioma and Vascular Birthmark Foundation P.O. Box 106 Latham, N.Y. 12110 Contact: Linda Shannon, Executive Director E-mail: hvbf@aol.com or info@birthmark.org Web page: www.birthmark.org
	See Klippel-Trenaunay Syndrome
Hemochromatosis
	Hemochromatosis Research Foundation P.O. Box 8569 Albany, NY 12208 Phone: (518) 489-0972 Fax: (518) 489-0227
Herpes
	Herpes Resource Center American Social Health Association P.O. Box 13827 Research Triangle Park, NC 27709 Contact: Leigh Jolley, Program Coordinator Phone: (919) 361-8488 (National Herpes Hotline) Purchase Herpes Info: (800) 230-6039 Web page: www.ashastd.org
Histiocytosis
	Histiocytosis Association of America, Inc. 302 N. Broadway Pitman, NJ 08071 Phone: (800) 548-2758 Fax: (609) 589-6614
Top Of page
-I-
Ichthyosis
	Foundation for Ichthyosis & Related Skin Types, Inc. (F.I.R.S.T.) P.O. Box 669 Ardmore, PA 19003-0669 Phone:(610) 789-3995 or (800) 545-3286 Fax: (610) 789-4366 E-mail: ichthyosis@aol.com Web page: www.scalyskin.org
	National Registry for Ichthyosis & Related Skin Disorders University of Washington Box 356524 Seattle, WA 98195 Phone:(800) 595-1265 or (206) 616-3179 Fax: (206) 616-4302 E-mail: ichreg@u.washington.edu Web page: depts.washington.edu/ichreg/ichthyosis.registry/
Top Of page
-K-
Klippel-Trenaunay Syndrome
	K-T Syndrome Support Group 4610 Wooddale Avenue Edina, MN 55424 Contact: Judy Vessey, President Phone: (612) 925-2596
Top Of page
-L-
Leprosy
	Damien Dutton Society for Leprosy Aid, Inc. 616 Bedford Avenue Bellmore, NY 11710 Phone: (516) 221-5829
	Gillis W. Long Hansen's Disease Center 5445 Point Clair Road Carville, LA 70721 Phone: (504) 642-4700 Fax: (504) 642-4729
Lupus
	American Lupus Society 3914 Del Amo Boulevard Suite 922 Torrance, CA 90503 Phone:(213) 542-8891 or (800) 331-9802
	Bay Area Lupus Foundation 2635 North First Street Suite 206 San Jose, CA 95134 Phone: (408) 954-8600 or (800) 523-3363 Fax: (408) 954-8129
	Lupus Foundation of America, Inc. 1300 Piccard Drive Suite 200 Rockville, MD 20850 Contact: Deb Blom, Field Service Manager Phone: (301) 670-9292 or (800) 558-0121 Fax: (301) 670-9486 Web page: www.lupus.org
	Massachusetts Chapter 425 Watertown Street Newton, MA 02158 Contact: Mimi LaCamera, Executive Director Phone: (617) 332-9014
Lymphomatoid Papulosis (& other Ki-1 positive cutaneous lymphomas)
	Lymphomatoid Papulosis Central Registry Department of Pathology Beth Israel Hospital 330 Brookline Avenue Boston, MA 02215 Contact: Marshall E. Kadin, M.D. Phone: (617) 667-5886 Fax: (617) 667-4533 E-mail: mkadin@bidmc.harvard.edu

-M-
Melanoma See Skin Cancer
Top Of page
-N-
Neurofibromatosis
	National Neurofibromatosis Foundation 95 Pine Street 16th Floor New York, NY 10005 Phone: (212) 344-6633 or (800) 323-7938 Fax: (212) 747-0004 E-mail: NNFF@aol.com Web page: nf.org
Nevi
	Nevus Network - Congenital Nevus Support Group PO Box 1981 Woodbridge, VA 22193 Phone: (703) 492-0253 Fax: (405) 377-3403 E-mail: nevusnet@bigfoot.com Web page: www.nevusnetwork.org

-O-
Ostomy
	United Ostomy Association 19772 MacArthur Boulevard Suite 200 Irvine, CA 92612-2405 Phone: (714) 660-8624 or (800) 826-0826 Fax: (714) 660-9262 E-mail: uoa@deltanet.com Web page: www.uoa.org
Top Of page
-P-
Port Wine Stain
	National Congenital Port Wine Stain Foundation 125 East 63rd Street New York, NY 10021 Contact: Janet O'Kane hone:(516) 867-5137 Fax: (516) 869-1278
Porphyria
	American Porphyria Foundation P.O. Box 22712 Houston, TX 77227 Contact: Desiree Lyon, Executive Director Phone: (713) 266-9617 E-mail: porphyrus@juno.com Web page: www.enterprise.net/apf/
Post Herpetic Neuralgia
	VZV Research Foundation 36 East 72nd Street (PHN) New York, NY 10021 Phone: (212) 472-3181
Pseudoxanthoma Elasticum
	National Association for Pseudoxanthoma Elasticum 3500 East 12th Avenue Denver, CO 80206 Contact: Al Ferrari Phone: (303) 355-3866 Fax: (303) 355-3859 E-Mail: pxenape@estreet.com Website: www.napxe.org
	PXE International, Inc. 23 Mountain Street Sharon, MA 02067-2234 Ms. Sharon Terry, President Phone: 781-784-3817 Fax#: 781-784-3817 Email: pxe@tiac.net Website: www.pxe.org
Pseudofolliculitis Barbae
	Pseudofolliculitis Barbae Sufferers of America, Inc. P.O. Box 3761 Port Arthur, TX 77643 Phone: (409) 982-2206 Fax: (409) 983-2103 Web page: www.pernet.net/~pfb
Psoriasis
	Canadian Psoriasis Foundation 1306 Wellington Street, Suite 500-A Ottawa, ON K1Y 3B2 CANADA Phone: (613) 728-4000 or (800) 265-0926 Fax: (613) 728-8913
	International Federation of Psoriasis Associations 6600 SW 92nd Avenue, Suite 300 Portland, OR 97223-7195 Phone: (503) 244-7404 Fax: (503) 245-0626 E-mail: marcy@npfusa.org
	National Psoriasis Foundation 6600 S.W. 92nd Avenue, Suite 300 Portland, OR 97223-7195 Contact: Gail M. Zimmerman, Executive Director Phone: (503) 244-7404 Fax: (503) 245-0626 E-mail: getinfo@npfusa.org Web page: www.psoriasis.org
	Problem Psoriasis Clinic 909 Ridgeway Loop Road Memphis, TN 38103 Phone: (901) 767-3612 Fax: (901) 761-5468 {A Special clinic where patients with difficult-to-manage psoriasis are invited to seek help based on microbiologic investigation and antimicrobial therapy.}
	Psoriasis Research Institute 600 Town & Country Village Palo Alto, CA 94301 Phone: (415) 326-1848 Fax: (415) 326-1262
	Psoriasis Society of Canada National Office P.O. Box 25015 HaliFax, NS B3M 4H4 CANADA Contact: Judy Misner, Founder Phone: (902) 443-8680 Fax: (902) 457-1664
Top Of page
-R-
Rosacea
	National Rosacea Society 800 South Northwest Highway, Suite 200 Barrington, IL 60010 Contact: Suzanne Corr Phone: (847) 382-8971 or (888) NO BLUSH Fax: (847) 382-5567 E-mail: rosaceas@aol.com
Top Of page
-S-
Sarcoidosis

Scleroderma
	Scleroderma Federation, Inc. See United Scleroderma Foundation, Inc.
	Scleroderma Info Exchange, Inc. 150 Hines Farm Road Cranston, RI 02921 Contact: Harlan Hersey, Executive Director Phone: (401) 943-3909
	Scleroderma Research Foundation Pueblo Medical Commons 2320 Bath Street Suite 307 Santa Barbara, CA 93105 Phone: (800) 441-CURE Web page: www.srfcure.org
	United Scleroderma Foundation, Inc. (now merged with Sclerodema Federation) 89 Newbury St, Suite 201 Danvers, MA 01923 Phone:(408) 728-2202 or (800) 722-HOPE Fax: (408) 728-3328 Web page: swcybermall.com/scleroderma/
Shingles
	VZV Research Foundation 40 East 72nd Street New York, NY 10021 Phone: (212) 472-3181
Sjogren's Syndrome
	National Sjogren's Syndrome Association 5815 North Black Canyon Highway, Suite 103 Phoenix, AZ 85015-2200 Phone: (602) 433-9844 Fax: (602) 433-9838 E-mail: nssa@aol.com Web page: www.sjogrens.org
	Sjogren's Syndrome Foundation, Inc. 333 N. Broadway, Suite 2000 Jericho, NY 11753 Phone: (516) 933-6365 Fax: (516) 933-6368 or (800) 4-SJOGRENS, (800) 475-6473 Web page: www.sjogrens.com

Look Good, Feel Great with Beautiful Skin ™

Dr. Crutchfield is a member or graduate of these prestigious organizations.

Demonstrating his education, experience, and commitment to providing patients with the highest quality medical & cosmetic dermatologic care.
When choosing your physician, demand nothing less. Remember..... "Quality Matters"